Karissa was born in January of 2005. Two weeks after birth she developed a lump behind her left ear. We took her to the emergency room and were told she had an ear infection and sent home. The lump continued to grow and we were given many misdiagnosis.
Finally we were told she had a hemangioma and we waited for 6 months to been seen in Vancouver. When we were seen in the Vascular birthmark office we were told that it would eventually just go away and it would cause no problems. Even though it had tripled in size they had told us no to steroids to help slow the growth. We were sent home.
On the way home her Hemangioma began to ulcerate. We spent the next 6 months in hospital due to infections. We were once again refused follow up appointments in Vancouver. After all of this we decided to look for a new clinic. Within 2 weeks we were seen in Calgary. Calgary then told us that we were too late for treatment and we would now have to deal with treating the underlying conditions. At this point her tumor grew to over 9X7 cm.
Karissa has currently gone through 8 surgeries due to infection. She was most recently diagnosed with sleep apnea and hearing loss both which require expensive equipment. We travel to Calgary frequently to follow up on her condition and are working towards a consult with Dr Waner in New York who has top of the line equipment and Knowledge for her condition.
Kaelyn was born in May of 2008 and began having seizures at one year of age. After a lot of blood work and a trip to Vancouver they decided she had a metabolic disorder. Kaelyn is now required to travel as well to monitor her condition. She is awaiting an oximeter to test her oxygen levels while sleeping and possibly in need of a tonsil surgery. This would mean a long term stay in Calgary because of her underlying conditions.
We have many more trips ahead of us with Kaelyn’s ongoing issues and Karissa being in need of major plastic surgery any donations are appreciated. We are blessed to have many charities backing us but a lot of our expenses are still out of pocket.
Thank you for your time and for visiting our website, we appreciate the help. I realize that some people may not be comfortable sending money online, so we are also accepting donations directly at the Northern Savings Credit Union under the account name "Liam and Celina Hall in trust for Karissa Emilia Hall"Watch the beautiful video on the Hallway Site Here
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